University of Wisconsin–Madison

Tag: patient centered research

Older Adults Are Setting the (Research) Agenda

“In the world of research, we usually get asked [for input] after the questions are already formed,” says Mary, a member of the Madison Board of Older Adult Advisors (BOAA). “So, to include us from the very beginning of the process—I just feel it’s imperative!” The Madison BOAA—like their colleagues on the Rural BOAA in …

Older Adults as Research Advisors: “We Have What They Don’t Have”

“Aging and health issues change life’s choices and limit our options. But we must adapt and learn new ways to stay healthy and active. … I want researchers to know that aging requires that adaptability. But the system can make things better for aging people too.” “You see the color of my skin. You see …

Helping Improve Care for Others: One Patient Advisor’s Experiences

“I don’t want this to happen to anyone else, so I got involved,” says Rosie Bartel. Bartel describes herself as a wife, mother, grandmother, and educator. She’s also a patient advisor to health researchers and scholars, drawing on her own devastating healthcare experiences. “In August of 2009 I underwent a total right knee replacement that …